Normal?

What is normal?

Is it brown hair or blonde?

Is the blue eyes or green?

Is it being 1 meter tall or 1.5?

What is normal?

People define Down syndrome as an 'abnormality'

But no one ever defines normal.

If normal is not defined by hair colour, eye colour, height or weight,

why should it be defined by chromosomes?

Please leave a comment and let me know...

What is normal?

Luna park

ok, so you will probebley hear me talking about Billy, Zac and Annie alot as most things I do involve them :) They are van, went and picked up Jodys sister and kids and headed domy naighbours but I consider them brothers and sisters. Billy is 6 and a half, Zac 3 and a half and Annie is almost 2. Yesterday we left Annie at home with Pete, took mums wn to Syndey for a day at Luna park! Stuck in the back of the car with 4 little boys, FUN!!!!!

Ok so we got their and the boys were so exited! First we went on the giant faris wheel! Zac loved it!

We thought Zac wouldnt get much out of it, we didnt know if he was too little. Turns out he got the most out of it! He didnt care he couldnt got on everything, he just enjoyed what he could go on. Me and him were 'ride buddys'. He wanted me to go on everything with him! Jody asked if she could go on the slides with him but he said "No, I wanna go with Tayli!" The slides were his Fav! We went on them over and over! He just loved them! When I would get scared he would put his hands on my face and say "I'll look after you Tayli" and give me a big kiss (He is very effectionate)

Billy was a bit scared on the bigger rides but loved taking Zac on the baby rides. There was this roller coaster and I took Billy on it, He absolutly freaked out! We got to the top of the hill and I had to put my hands over his eyes he was that scared! I must admit I was a bit freaked as it went right over the top of the water and i felt as if it was going to derail at any second! But I had to act like it wasnt scary so Billy didnt get even more scared. When we got off he asked if I was scared, I said no but the picture on the computer screen showed him different. We both stood their cracking up! Both out jaws had droped, my eyes were so wide and I had my hand over Billys eyes. It looked SO funny, We looked terrified!

We left to go home at around 4pm. The way home was sooooo noisey, stuck in the back with the 4 noisy boys AGAIN! To keep them occupied I asked them what the best part of the day way. Billy said trying to push the people on stilts over and Zac said watching me on the scary tango train (which I had to go on by myself as everyone elce was too scared)

It ended up being a great day out! The boys really enjoyed it and so did I!

Me and my precious Zac on the tumble bug :)

Down syndrome.

People often say how much they feel sorry for people who 'suffer' from Down syndrome. When I mention that Oscar has downs people often say something along the lines of "Oh, I'm so sorry" or "That must be so hard". I tell them different. Any one who knows and loves someone with Down syndrome know it is a true blessing! Yes, medical conditions can be scary, but, if you have faith in Gods will, He will give you strength to face WHATEVER happens.

When Oscar was born I questioned Why? Why, my little boy? Why should he have to suffer? Now I know different! Oscar was sent here to teach. Teach love, Teach joy, Teach the way God intended for us to live. Through Oscar, God has lead me to meeting some of the most amazing people. Honestly, it is these people who have opened my eyes to the Lord's ways of teaching and who have anabled me to answer the questiong, Why.

God works in marvolous ways, and did not make a mistake when giving Oscar an extra chromosome. The very thing that builds faith is to not question why, but to answer yes. Yes lord, I am willing to embrase the chalanges and joys of Down syndrome. Yes lord, I am willing to teach people that you do not make mistakes, You make individuals for the purpose they need to for fill in life.

One in 733 people are born with Down syndrome. People need to realize that they are the Lucky 1 in 733 people. The only thing that I am scared of is the way people treat persons with Down syndrome. It breaks my heart to think that one day I am going to send Oscar out into a world that people will not accept him for the beautiful person he is, because they do not understand. They do not understand that this is how God intended them to be! They do not understand just how much joy they bring to so many lives!

God doesnt make mistakes

Oscar is still very sick but not stopping those precious smiles! Thought I'd share some lovin' with you all :) This avo I went over his place and he had just gone to bed, he woke up 10 mins before I had to leave!!!! Cheeky boy! But it was the best 10 mins :)

How cute is my boy!

I love this video! I kept blowing in his face and he was cracking up!

I love you so so much Oscar,

I love those big sparkling eyes that light up so so much!

I love that face you pull as soon as you see a carmrea points your way!

I love the way as long as mickey mouse is on your happy!

I love the way you can always make me smile!

I love every little thing about you baby boy!

One year ago....

Oh, How it hurts!

Oh, how the thought of Oscars surgery being exactly a year ago kills me! It kills me to think that for a entire year he has been in pain! I praise God that he has given me enough strength to not question why, I will not know till the day I face Him. But little man, I want you to know I am so proud of you. I can not imgin the pain you have been through, and with a smile most of the time. You are such a brave brave little boy and I love you so so much!

Oscars scar right after surgery

1 hr after surgery

Oscar finnally awake! With a new bottom!!!

Sick of this!

I am sick of people using the word 'retard' all the time! Even if they dont mean it THAT way its still not right! It is become a common thing which it SHOULDN'T! Please, If you use this word listen to my message... PLEASE stop, I dont want Oscar to be treated any differant to any other child and I NEVER want him to hear that word!

Music to my ears!

A day of rest for precious Oscar and seems to be doing him well!

Carolyn says he has slept most day and seems so much better then he has been!

Thanks for praying for me!

"The lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with his love, He will rejoice over you with singing." Zephaniah 3:17

Continue prayers, God is mighty! :)

The downs of Downs!

I am forever talking about the 'ups of downs' and how much of a blessing Down syndrome is....

Well the one thing I dont like is the low imune system!!!!



With All good news comes bad , so.....

Good new is that Oscar bottom has cleared so much! Its still a bit red and sore but its a whole lot better then it was! Praise God!

Now for the bad news! Cold = NOT GOOD AT ALL!

Taking him to Doctors soon! Please God make it easy to get into the doctors so they can heal my little man!



His cough is really really bad! Sounds like he is chocking on alot of flem down in there! He just can not get it up, poor little boy! Imagin how that would feel? It sounds almost as if he is choking and its only getting worse!



Please continue to pray, God hears EVERYTHING!

God is mighty and has the ablity to heal, Please Lord heal Oscar!



Thanks prayer worriers :) Xoxoxox

Almost a year!

Oscar isnt in hospital and he will hopfully be going to the doctors for some more meds tomorrow!
My poor little man. His last surgery on his bottom was almost a year ago, Can you believe it? A year of hell for my little man. The first year of his life wasmainly doctors visits and surgerys and when he had his final surgery it was pretty much pain from then on!
Just to explain his surgerys...
#1 was at two days old, they had to put the colostomy bag on
#2 they attempted to connect his bowel to his bottom but it didnt work
#3 They succefully connected his bowel to his bottom
#4 they created the bottom hole! (oscar had to be probed 2ce a day to keep the hole open, this hurt him alot for the first few months but he got used to it after a while)
#5, not to sure? SORRY!
#6 they removed the colostomy bag and Oscar started using his bottom!

So it was surgery after surgery! And when he finally got a new bottom it was PAIN :(

When he poo's it just burns his bottom (The skin isnt used to the acids in the poop)

Ifyou have ever had a tiny burn on your finger you know how painful it is,
Imagin that but really bad covering your bottom! I can only imagin the pain my littleman goes through!
Almost every day he screams for hours in pain and there is nothing we can do! Heartbreaking!

However, God has given my little man SO much strength, through this all he has smiled!

Please continue to pray for Ozzy boy, Pray for a pain free life! Pray for a happily ever after :)

Continued prayers!

Ok, so I havnt had any updates today so I'mtaking that as a good thing?
I know they would have rang if he had to go into hospital so thats a good sign!
I will let you know when I do :)
Please continue prayers for my little man!
I absolutly hate seeing him in so much pain :(
Normally this would be a time I question my faith in God but I know this is his will and something good is bound to come out of it, I just pray it will be soon!
Lord, take all pain away for my little man!

Thanks prayer worriers!

Hospital?

Just went to see Oscar, not looking good! If he gets any worse looks like we will be making an entrance in the ER. Cold is very very bad and bottom is really sore! My poor little man, just breaks my heart!
Please pray he will get better SOON!
Xx

Pray for Bubba

As you know Oscar has had a sore butt for almost a year now, for the past month it has been looking really good but today its not! Poor little man! He is very very sore again! He also has a bad cold and teething which could be the reason his bottom is so sore!
Please pray for my little man
Xoxox

Chrissie

For those of you who have not heard of Chrissie she was an amazing for year old girl for Texas. She was born in serbia and left as an orphan when her family found out she had complex heart problems. Her forever family rescued her in October 2009. Chrissie underwent heart surgery on the 19th of April 2010. She fought and fought with so much strength. God called her home after on month battling for her life. During this month God used Chrissie to show his ablity to heal and perform miricals one after the other.


I just wanted to share Chrissies story and a link to Lorraines blog with you all.


Chrissie touched my life in MANY ways.


God has given her family muh strength which should be admired by all.





There are links on Lorraines blog to donate money in honor of Chrissie and I strongly encourage you to do so.





Thanks everyone :)





http://www.allarepreciousinhissight.blogspot.com/





^Link to Lorraines blog, (hope it touches you as much as it did me)

Precious Chrissie, you changed my life from half way around the world, Hope you are having the best time dancing to Cinderella with Jesus. You are forever missed by the world and we all love you so so much.

Good night, or as Chrissie would say, Good night Ya'll :)