About a week or so ago I was asked to discribe what its like to have someone as such a big part of your life having Down syndrome. My answer was "Its amazing" but it didn't tell much to the person who was asking. It isn't really a question that can be anwered easily, but, a few months ago I came across an awesome anology on a friends facebook. I didn't think to use this anology when I was answering the question but later that afternoon I thought alot about it and tryed to find it. After looking through most my friends facebook pages I gave up and decided to put it into my own words on my blog.
This morning I opened my email and notaced someones picture was something to do with this anology! I asked if she knew about it and sure enough she did! At first I thought it was just coincedence but it is clearly the work of God! He is amazing, With Him ALL is possible!
Anyway I would love to share this with you, Enjoy :)
I am often asked to discribe the experiance of raising a child with a disablity- try to help people who have not shared that unique experiance to understand it, to imagine how it would feel. It feels like this...
When you're going to have a baby, it's like planning a fabulous trip to Italy. You buy a bunch of travel guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It is all very exiting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plan lands. The stewardess comes in and says "Welcome to Holland"
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I dreamed of going to Italy!"
But there has been a change in flight plans. They have landed in Holland and there you must stay.
The imporatant thing to remember is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, femine and desease. It's just a differant place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a differant place. It' slower paced then Italy, less flashy then Italy. But after you catch your breathe, you look around.... and you notace that Holland has windmills.... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever go away because the loss of that dream is a very sagnificant loss.
But... if you spend your life morning the fact that you didn't get to Italy, you may never be free to enjoy the very special, and lovely things.... about Holland
When I read this amazing anology I realized (although I'm not his mum) I feel the exact same way about Oscar. When he was born I was scared, I was angry, I was confused. I questioned my faith, I questioned myself and I questioned my love for my precious baby cousin. Even 3 months later I still had not realised how great 'holland' is. My nextdoor naighbour Annie was born (not DS) and I questions why Oscar had to be like this but everyone elce was normal.
When I started getting support from people all around the world going through the same experiances I was able to accept and embrace the joys of Down syndrome instead of avoiding the subject all together.
Oscar has made me realise SO much! Instead of thinking, Why can't everyone be 'normal'?, I think, Why cant everyone have DS?
The world would be a more happier loveble place :)
Holland is Amazing!
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