Monday, March 28, 2011
Wednesday, March 23, 2011
Home time...
Selah Boo had surgery again this morning (my night!!) and she did fabulously!
The surgery was a compleate romoval of the shunt she had in and a new one placed in, which is aggestable to the amount of fluid that needs to be drained.
Poor sweet baby! I felt so terrible last night, when I knew they were wheeling my baby sister into that room without me giving her a kiss :(
All I can say is THANK YOU GOD!
Samanatha Hall, Selahs big sister, MY big sister, can on to chat right before I went to sleep... because of the time change it was all messed up! I went to bed about 12 my time and got up at 3am for Selahs surgery updates...
At school with 3 hours sleep = BLAAHHHH!
But, back to Sam... We got to cry together... pray together... reasure eachother and boy did it feel good!
Yes, God is good!
But... to the point because I am in History and the bell is about to go... Selah is OK! Selah is doing GREAT!
Well, she is crashed out at the moment... but OK :)
Please pray for a speedy recovery. Doctors say if all goes well Mama and bubba can go HOME on Friday! Whoooo!
Hopfully they can, everyone is doing great at home, just missing Muma, so it will be great to see them home SOON!
Thank you for praying.... one more photo but warning... don't look down if you are grossed out by stiches!! Poor sweet baby!
..................................WARNING!!!.....................................
Gotta run, history is calling ;)
More soon!
The surgery was a compleate romoval of the shunt she had in and a new one placed in, which is aggestable to the amount of fluid that needs to be drained.
Poor sweet baby! I felt so terrible last night, when I knew they were wheeling my baby sister into that room without me giving her a kiss :(
All I can say is THANK YOU GOD!
Samanatha Hall, Selahs big sister, MY big sister, can on to chat right before I went to sleep... because of the time change it was all messed up! I went to bed about 12 my time and got up at 3am for Selahs surgery updates...
At school with 3 hours sleep = BLAAHHHH!
But, back to Sam... We got to cry together... pray together... reasure eachother and boy did it feel good!
Yes, God is good!
But... to the point because I am in History and the bell is about to go... Selah is OK! Selah is doing GREAT!
Well, she is crashed out at the moment... but OK :)
Please pray for a speedy recovery. Doctors say if all goes well Mama and bubba can go HOME on Friday! Whoooo!
Hopfully they can, everyone is doing great at home, just missing Muma, so it will be great to see them home SOON!
Thank you for praying.... one more photo but warning... don't look down if you are grossed out by stiches!! Poor sweet baby!
..................................WARNING!!!.....................................
Gotta run, history is calling ;)
More soon!
Monday, March 21, 2011
21.3
Well, really I am a day late, but, US time I'm still OK ;)
Today is an important day.
Down Syndrome.
The words I cried over not so long ago.
And now, we celebrate!
We are thankful for those two words that mean so little but so much at the same time.
Thankful for the JOY those words bring to my heart.
When Oscar was born he was given a label, "Unable"
Really? I feel like taking him back to that hospital and proving them wrong.
HE IS ABLE!
He CAN smile, he CAN giggle, he CAN love.
Today we celebrate you, Oscar!
And we celebrate Laura and Harley, Nella and Josiah, Jamie and Max and so many others blessed with an extra chromosome!
Chromosomes that were combined perfectly.
Chromosomes that make you unique and specail.
But, sweet boy, you will not be judged on your number of chromosomes.
Down syndrome does not define you.
You are a person with Down syndrome.
NOT a 'Down syndrome person'
People get things mixed up sometimes...
Like when they decided to call it 'Down syndrome', thats a bit silly huh?
I once saw on a sweet friends blog "They call it Down syndrome, I call THAT down right silly!"
I totally agree, baby boy :)
You are taking me on a journey I never thought I would go on...
You are taking me to Holland, and I ain't looking back, babe!
HAPPY WORLD DOWN SYNDROME DAY!
Today is an important day.
Down Syndrome.
The words I cried over not so long ago.
And now, we celebrate!
We are thankful for those two words that mean so little but so much at the same time.
Thankful for the JOY those words bring to my heart.
When Oscar was born he was given a label, "Unable"
Really? I feel like taking him back to that hospital and proving them wrong.
HE IS ABLE!
He CAN smile, he CAN giggle, he CAN love.
Today we celebrate you, Oscar!
And we celebrate Laura and Harley, Nella and Josiah, Jamie and Max and so many others blessed with an extra chromosome!
Chromosomes that were combined perfectly.
Chromosomes that make you unique and specail.
But, sweet boy, you will not be judged on your number of chromosomes.
Down syndrome does not define you.
You are a person with Down syndrome.
NOT a 'Down syndrome person'
People get things mixed up sometimes...
Like when they decided to call it 'Down syndrome', thats a bit silly huh?
I once saw on a sweet friends blog "They call it Down syndrome, I call THAT down right silly!"
I totally agree, baby boy :)
You are taking me on a journey I never thought I would go on...
You are taking me to Holland, and I ain't looking back, babe!
HAPPY WORLD DOWN SYNDROME DAY!
Sunday, March 20, 2011
Yesterday I got to see my sweet boy :)
Not for long, but it was so great to see him happy!
I really can't explain what it is like to see him smiling all of the time now! He knows he is out of pain and he is for sure making the most of it :)
So, we went for a stroll down to the store to buy and ice cream, a perfect treat for my specail little man.
And it was a glourous walk down... enjoying my sweet blessing.
I decided to leave my camera behind,I just wanted it to be us... no need to waste time snapping, I would forever cherish these moments.
When we got in the line at the store Oscar caught the eye of a lady, she smiled. She asked how old he was and was shocked when I said he was almost three...
Then she asked what he could 'do'. I told her he was working on crawling, and she smiled :)
I turned around to a lady tapping on my sholder.. she was old... 60 or so... and she looks me in the eye and says "wow, he is dumb even for a downs baby"
My jaw almost hit the ground! Really?! Did she just say that!!!
Sometimes I just can't beleive people! I can not wait to see the day when the world KNOWS the blessing of down syndrome :)
Untill then, awareness is the first step... spread it!
One last thing,
Happy birthday to you, Jamie Kay :)
I love you!
Not for long, but it was so great to see him happy!
I really can't explain what it is like to see him smiling all of the time now! He knows he is out of pain and he is for sure making the most of it :)
So, we went for a stroll down to the store to buy and ice cream, a perfect treat for my specail little man.
And it was a glourous walk down... enjoying my sweet blessing.
I decided to leave my camera behind,I just wanted it to be us... no need to waste time snapping, I would forever cherish these moments.
When we got in the line at the store Oscar caught the eye of a lady, she smiled. She asked how old he was and was shocked when I said he was almost three...
Then she asked what he could 'do'. I told her he was working on crawling, and she smiled :)
I turned around to a lady tapping on my sholder.. she was old... 60 or so... and she looks me in the eye and says "wow, he is dumb even for a downs baby"
My jaw almost hit the ground! Really?! Did she just say that!!!
Sometimes I just can't beleive people! I can not wait to see the day when the world KNOWS the blessing of down syndrome :)
Untill then, awareness is the first step... spread it!
One last thing,
Happy birthday to you, Jamie Kay :)
I love you!
Tuesday, March 15, 2011
Selah is doing good :)
Selah is doing really good since her surgery!
Please continue to pray for my baby sissy :)
Look at her wittle chub rolls!
Ahhh, i love her!
Thank you x
Monday, March 14, 2011
My sweet Teague's birthday!
Your probebly thinking 'say what?! Who on earth is Teague?!'
I don't think I have ever called him Teague here before... but Teague is my sweet little Igor :)
And today he turns 4!
Happy birthday sweet boy!
You are so loved, and although you don't know it, there were celebrations held for you all over the world! And they are still going! Let me prove it to you....
And it was a great day!
Happy birthday, sweet boy
I love you :)
I don't think I have ever called him Teague here before... but Teague is my sweet little Igor :)
And today he turns 4!
Happy birthday sweet boy!
You are so loved, and although you don't know it, there were celebrations held for you all over the world! And they are still going! Let me prove it to you....
And it was a great day!
Happy birthday, sweet boy
I love you :)
Sunday, March 13, 2011
A regret and a plea...
My heart feels empty sometimes... I think about my life and what I could have done better, and realise we make mistakes, big and little we make them. We learn from them.
The hole in my heart is growing, and it hurts!
The biggest regret, the only regret was not being there to kiss my baby sister into surgery... I should have been there! I should have kissed Chrissie good bye when she went to that operating room, but I couldn't!
And I feel terrible!
My heart longs to hold her and kiss her, for the first and last time...
And now.. I am put there again, because this time tomorrow Selah will be wheeled into that room, layed on the table to get her brain fixed... and I'm not there.
Regret.
Emptiness.
Which leads to the plea....
PRAY!
Please!
Ask God to let us keep her.
For her to be there when I do get the chance to meet my family.
My heart aches and longs to be there...
To hug Matt and Lorraine, Samantha and Emily, Naomi and Stephanie, Mattie and Parker, Maribeth and Saywer, Ella and Asher, Keifer and of course, Princess Selah.
My heart is there... with my family... where it always has and always will be!
PLEASE God, comfort them, because I can't. Kiss her, because I can't. HEAL her, beacause I can't!
Please, remeber Selah in your prayers. xoxo
Monday, March 7, 2011
Tic Tok
Has anyone elce notaced how fast time is going these days???
I remember when Oscar was a wittle tubby baby, and now he is a big boy almost crawling!
When we were teaching Zac how to talk and now he says things like "God loves us all, well, exept for Tayli"
When Annie was a sweet little baby lying in my arms, and now she is a crazy little feral that runs round the house naked and screaming... Yep CRAZY!
Everything goes sooo stinkin' fast these days.
Right now I just want it to slow down, God, we NEED time!
This little girl needs time...
Sweet Constance will be transfered in April... less then a month away, and time is ticking by, FAST!
My sweet friend Ashley is having a give away on her birthday/world Down Syndrome Day, the 21st of March, to raise money for this sweet baby
Please spead the word and help find her a family... a despratly needed family!
Because once she is transfer all hope is lost... she is lost, forever!
She can NOT be adopted!
He life is in our hands right now... PLEASE, help save her!
xo
I remember when Oscar was a wittle tubby baby, and now he is a big boy almost crawling!
When we were teaching Zac how to talk and now he says things like "God loves us all, well, exept for Tayli"
When Annie was a sweet little baby lying in my arms, and now she is a crazy little feral that runs round the house naked and screaming... Yep CRAZY!
Everything goes sooo stinkin' fast these days.
Right now I just want it to slow down, God, we NEED time!
This little girl needs time...
Sweet Constance will be transfered in April... less then a month away, and time is ticking by, FAST!
My sweet friend Ashley is having a give away on her birthday/world Down Syndrome Day, the 21st of March, to raise money for this sweet baby
Please spead the word and help find her a family... a despratly needed family!
Because once she is transfer all hope is lost... she is lost, forever!
She can NOT be adopted!
He life is in our hands right now... PLEASE, help save her!
xo
Yo Kenzie, its cho birthday!
Wish I was there to party with you.... cause its cho birthday ;)
Mackenzie Rice.... I LOVE YOU!!!
Happy birthday, sweet girl!
You are amazing, beautiful and wonderful, inside and out!
I hope your birthday is as wonderful as you!
Since having the honor of getting to know you, I have watch you change my life!
I wish I could give back to you a fraction of what you give to me :)
Mackenzies beautiful baby sister, Lily, has Down Syndrome, hence the reason why we know eachother ;)
Kenz, you have to be one of the best big sissy's EVER!
I see your love for Lily every day, and it shows me how to love, truly love... to see beauty in places many don't bother looking! YOU show me that!
So, thank you, pretty girl!
I remember the day we 'met'... Ash asked me if we could use another member of 'to love the unloved'. I jumped at the idea, because I knew God was telling us the more the merrier ;)
Girl, meeting you was one of the best things that has ever happened to me!
YOU are such a blessing to my life!
Happy Happy Happy birthday, precious girl!
I love you more then words can say, xoxoxoxox
Mackenzie Rice.... I LOVE YOU!!!
Happy birthday, sweet girl!
You are amazing, beautiful and wonderful, inside and out!
I hope your birthday is as wonderful as you!
Since having the honor of getting to know you, I have watch you change my life!
I wish I could give back to you a fraction of what you give to me :)
Mackenzies beautiful baby sister, Lily, has Down Syndrome, hence the reason why we know eachother ;)
Kenz, you have to be one of the best big sissy's EVER!
I see your love for Lily every day, and it shows me how to love, truly love... to see beauty in places many don't bother looking! YOU show me that!
So, thank you, pretty girl!
I remember the day we 'met'... Ash asked me if we could use another member of 'to love the unloved'. I jumped at the idea, because I knew God was telling us the more the merrier ;)
Girl, meeting you was one of the best things that has ever happened to me!
YOU are such a blessing to my life!
Happy Happy Happy birthday, precious girl!
I love you more then words can say, xoxoxoxox
Saturday, March 5, 2011
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